Searchable abstracts of presentations at key conferences in endocrinology

ea0086ns1.3 | Neuroendocrine tumours | SFEBES2022

Patient perspective of multiple endocrine neoplasia syndromes

Grey Jo

AMEND provides information resources and support services to families with MEN syndromes, offering free membership, educational and peer support events, and a free Counselling Service provided by rare disease specialist psychotherapy organisation, Rareminds. Our 2021 Counselling Service feedback data (n=24) showed that the biggest issue by far for patients is dealing with their diagnosis (39% of respondents). Managing symptoms and treatment are also significant issues...